Skip to main content

I Am 30 Years Old

I am thirty years old.  Three months ago, I was settling into the house my fiancé and I bought last year. I was celebrating my engagement, planning a fall wedding, and thinking about starting a family soon. After eight years of working for another agency, I was also really happy to be out on my own, setting up a nonprofit to provide services to people with developmental, physical, and intellectual disabilities. My nonprofit, Community Navigators, was about to be approved by the State of Connecticut. 

Then I was diagnosed with breast cancer. I had a double mastectomy this month. When I developed some new pain, I went to the emergency room. They found that the cancer had already spread.

I would still like to run my nonprofit, provide services to others, be married and have children. But now I have to change my plans. I am starting treatment immediately.  I’m not going to have time to freeze any eggs or embryos first and for now I can’t really think about having children.  Maybe later. My fiancé and I are planning a much smaller wedding in May. And I am going to do all I can to stay healthy during my chemotherapy and hormone treatments so that I can eventually get back to my job.

The problem is that this could not have come at a worse time for me financially. Both my fiancé and I are self-employed. If I can’t work for a few weeks, I’ll have no income.  And when he’s taking care of me, he can’t work as much either.  We have health insurance like we’re supposed to, but our deductibles are high ($5000) and my own out-of-pocket maximum this year is $6,850. I’ve learned that I may have to go out-of-network for the specialty care and consultations I need, and those bills will add thousands more to our out-of-pocket costs.  And we still have a mortgage and other bills to pay.

We are economizing as best we can.  Our families and many friends are also helping us out.  But the healthcare bills we have right now still have to be paid, and somehow we need to get the money to pay those bills and more to come over the next weeks and months.

So, as difficult as this is, we are asking our friends and their friends for help. We will never forget to pay it forward in the future when our friends and their friends need help from us.

by Larissa Gionfriddo Podermanski

Comments

Popular posts from this blog

For the Health of Our Community, Can We Plan More in Advance?

Mayor Florsheim has proposed a budget with a 2.7 mill increase for the coming fiscal year. This will mean an increase in taxes of approximately $500 per year for a home with a market value (not an assessed value) of $250,000, with larger increases for many homes in our city. While I appreciate the time and effort that went into his budget calculation, like many people I don’t believe that this is a sustainable increase on top of the increases of the past few years. What I appreciate even more is that the Mayor has invited members of the public to work together to offer their own perspective and suggestions to the City Council. In the past few weeks, I have offered several short-term suggestions, including a job freeze, a search for an alternative health insurance provider, and greater advocacy at the state level for fairer PILOT funding for Middletown. As an example, the Mayor’s budget proposes $77,800 for a Grantwriter versus zero from the Finance Department. Maybe we wait on that? ...

Veterans and Mental Illness

On a sultry June morning in our national’s capital last Friday, I visited the Vietnam Veterans Memorial .   Scores of people moved silently along the Wall, viewing the names of the men and women who died in that war.   Some stopped and took pictures.   One group of men about my age surrounded one name for a photo.   Two young women posed in front of another, perhaps a grandfather or great uncle they never got to meet. It is always an incredibly moving experience to visit the Wall.   It treats each of the people it memorializes with respect. There is no rank among those honored.   Officer or enlisted, rich or poor, each is given equal space and weight. It is a form of acknowledgement and respect for which many veterans still fight. Brave Vietnam veterans returned from Southeast Asia to educate our nation about the effects of war and violence. I didn’t know anything about Post Traumatic Stress Disorder when I entered the Connecticut Legislature in the...

Kamala Harris's Very Good Medicare Home Health Care Plan

My wife Pam and I bought private long term care insurance about twenty years ago. It’s a pretty good deal. For about $100 per month, we will someday – when we need it – be eligible for up to $200 a day toward either home health care or nursing home care. Add it up – it could save us hundreds of thousands of dollars as we age. I’ve been a big supporter of long-term care insurance since I was a Connecticut State Legislator in the 1980s. But to be honest, it’s never quite gotten the traction it should have. One of the reasons is that when people are young and healthy, they aren’t thinking about what their long-term care needs might be thirty or forty years down the road. But that’s when premiums would be most affordable. The bigger problem is that it’s really hard for insurers to predict the costs of long-term care that far in advance, too. The costs of care often far exceed those that are estimated way in advance. As a result, the policies that Pam and I have aren’t even offered anymore...